Most people are scared of hospital, doctors, blood and maybe even the site of needles. All of this is quite common to be scared of, for me it’s a huge part of my life. There is something comforting about the hospital. I know that I’ve talked about this before and I truly see the hospital as a second home and I am okay with that. Yes, it sounds completely strange to say that but when you get to know more about me and my story. It totally makes sense that I would feel this way. I do not want to be there, I do not want to have MRI, thyroid levels checked or constantly seeing doctors. It’s all part of my life journey with cowden syndrome, epilepsy and Lhermitte–Duclos disease.
Northwestern Hospital is my Home, my community of amazing doctors, nurses and staff. I’m so happy that we made the decision to follow my neurosurgeon to Northwestern three years ago. All of my doctors, gentic councilor and epilpsey social worker have done such an amazing work, they always check up on me(even on their days off/late nights), they even communicate with each other/talk about me and my care. This is why I feel so comfortable and relaxed at the hospital because I not only accept this hard life journey with many complicated medical conditions. I also love challenging my medical team and keep them on their toes. Lastly, I’m very interested in the medical(world) so I want to learn has much as I can and ask many question to my medical care. Even though these feeling of comfort at the hospital and around doctors is strange. I have even been told “that’s so wearied”. Yes – but not for me and my life. I also been told multiple times by a variety of different doctors “we do not get patients like you”. Well, I think that’s it for this blog post because now I’m just rambling on.