I love My Medical_Team

Yesterday, I had my pre-op appoitment/evaluation for my upcoming surgery on August 2, 2017. The appoitment was great and while I was trying to figure out what I wanted to do because I’m staying down here because I have my physical therapy appoitment at 1:30 pm. I ended up running into my epilepsy doctor and we stopped and talking for a little bit, she said I looked very good. I thought it was so funny and it’s happened before.

Even though I was just diagnosed with Cowden syndrome last year on August 11, 2016. I definitely no stranger to hospitals, doctors, MRI, CT scans and getting my blood drawn because it’s been a big part of my life from the very beginning. I wanted to write about my entire medical team at Northwestern hospital. I see a variety of doctors at the hospital and when I got genetic testing done/positive results for Cowden syndrome. Everyone was so positive/go-getting to get to know more about Cowden syndrome and the other reason why I love my team is that they wanted to how my over all health is doing. For example, would be when I saw my neurologist after my double mastectomy. He asked how the surgery went, how recovery was going along and then lastly my thyroid and let’s check levels because I was conned that things might be low. Then when I was leaving he said, “you’re one of our V.I.P patients”. That’s what I like about my doctors, they take their time to talk with you and really form a relationship with you.


Hospital is my 2nd home

While I’m writing this blog post, I’m sitting in the hospital’s cafeteria. Today, I had my doctors appoitment to talk with my plastic surgeon about moving forward so I can have my exchange surgery and what type of implants I would like. For my 2pm appoitment, we did not see him until 2:50pm and that’s because he was running behind schedule. I completely understand but it was frustrating because he rushed through our appoitment. I’m definitely not a fan of that but I understand that he needs to make sure he is able to see everyone.

I can’t believe I’m saying this but the hospital has been feeling like a second home and all of my doctors, nurses and the staff became like my second family. This may seem very strange to someone that does not go to the hospital/doctors appointments as often as I do. These past four months have been filled with many medical appointments and set-back when it came to recovering from my double mastectomy. I’m finally at the end of the tunnel and it feels so great. I have my exchange surgery scheduled for August 2, 2017. I’m so so so so ready.

Screen Shot 2017-07-11 at 7.46.16 PM.png

Physical Therphy

I can’t believe things are moving forward with getting closer to having my exchange surgery. I have my doctors appoitment with the plastic surgeon next week on Tuesday.

I wanted to talk about my experiences and reason why I’m currently doing physical therapy. During the early stages of recovery, I had a really hard time with moving my arms/movement and mobility was very limited. I also had slight lymphedema on the right side of my body.  While I went in to get my tissue expanders filled, I informed my nurse what was going on and she gave me a script for physical therapy. By the time I scheduled my appointments, I was doing a variety of exercises at home. I was able to get my arm mobility back on my own, so to be truthful with you I did not think I needed physical therapy. Many people around me said, “they can give me more help/exercises – things that you may not have thought of”. I was like, ok……..

I had my evaluation at the end of June and had my first appoitment was this week on Wednesday. I was nervous and also slightly excited to do some physical therapy because I love working out/being active. Through my first official physical therapy season. I was given new exercises to do. along with learning why my muscles are still tightening up. Even though I do have my mobility back in my arms. Physical Therapist told me when your body goes through surgery or has ant trauma happen to the muscles. They ended up tightening up to try and protect you, to not feel any pain. I thought that was very interesting information/medical education to learn about my body. I do believe I learned that information before, I just don’t know where. During my appoitment, the physical therapist also stretched me out/sports massage on the areas that I was really tight. Definitely, hurt but it also felt so amazing. My next appoitment will be on Monday, hopefully. All depend on insurance authorization, they are still waiting to hear from them.