Can’t Believe It_Happened

I’m living in the nightmare, the house voted and passed a new health care bill. This bill is complete CRAP and people that have some of the most serious medical conditions/pre-existing will die because they can’t afford to have health care or even get access to health care. I’m one of those people deeply affected, my mother has been fighting for her only child to make sure I have health insurance. Through the years, (before the ACA) my parents have been told many times from the health insurance people that I WAS UNINSURABLE. How could you tell a family, that your child is “not eligible for insurance coverage” due to my health and pre-existing medical condition?

I’m only 25 years old and I just had a mastectomy on April 21, 2017, because last year I found out I have a rare medical condition known as cowden syndrome (involves the Pten gene) and that brings along a lifetime risk of developing cancer. Breast cancer is on the top of the list at 85% and last year they found a less-invasive type of breast cancer known as DCIS in both of my breasts.

1. Cancer

2. hypothyroidism

3. chiari malformation 

4. Epilpsey

5. Benign Brain Tumor

6. Being born at 23 Weeks Premature (3 months early)

 

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My first five months of life was spent in the HOSPITAL. 

 

I live with all of these serious medical conditions/pre-existing. This is a big part of my life and how dare the government think it’s okay to take away the access to ALL  for health care. I will keep telling my story, sharing other people’s stories that are in the same boat as me. We are the ones that need the most medical care and with the bill that passed the house, they are saying it’s okay for the people with pre-existing medical condition to pay a lot more for their medical care. Then others that do not have pre-existing medical condition. I am angry because with this bill we are not moving forward but only backward. 

 

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Before (LEFT) ……. After (RIGHT)     MRI Brain Tumor 

 

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Thyroid Surgery at 18 years old 

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EEG for my Epilepsy 

 

 

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