This month of (May) is Brain Tumor_Awareness/Action, along with many other medical conditions. Four years ago my life completely changed because I was diagnosed with a rare brain tumor known as Lhermitte-Duclos disease (LDD), also known as dysplastic cerebellar gangliocytoma. Along with being angry, I also felt lost because I was a junior in college and I just turned 21 years old and now I had to deal with another major medical condition. After going through brain surgery last year and many more challenges, I have found a joy in this struggle/hard time in my life. That’s because I get to share my story, educate others about my rare brain tumor and connect with others that are dealing with similar situations.
I wanted to write this post to honor people that have lost their lives to brain tumors, people that are still fighting and survivors.
According to the National Brain Tumor Society’s website, there are nearly 700,000 people in the United States are living with a primary brain tumor, and approximately 78,000 more will be diagnosed in 2016.
QUICK BRAIN TUMOR FACTS from National Brain Tumor Society
- 688,096 Americans are living with a brain tumor
- 550,042 tumors are benign
- 138,054 tumors are malignant
- An estimated 77,670 people will receive primary brain tumor diagnosed in 2016
- 52,880 will be benign
- 4,790 will be malignant
- The average survival rate for all malignant brain tumor patients is only 34.4%
- Male: 31.7%
- Female: 34.4%
For the most common form of primary malignant brain tumors, glioblastoma multiforme, the five-year relative survival rate is only 5.1%
An estimated 16,616 people will die from malignant brain tumors (brain cancer) in 2016
Faces of Brain Tumors. (Photos should be up soon on my facebook page Keely Creative) Please check back later for an update.
Photography is done by from two weeks ago for the American Brain Tumor Association 5k walk/run. Please check them out of you or a family member was just diagnosed with a brain tumor. They have a lot of information, research and support groups (in-person/personal).